Yesterday I went to the neurologist to be tuned again.
My main concern was my 'turned in' left foot.
Though not painful, I was keen to fix it to halt any bad habits which may result in poor posture or balance.
A?Prof Williams turned me up to 1.8 on my left side, and 2.0 on my right side; the first time both sides were not the same.
Apparently the 2 probes each have 4 electrodes at the end of them, which can be adjusted in 4 different directions.
They were adjusted too,
I was asked to wait 45 minutes to see how things settled, and sent on my way to a restaurant in Toorak Rd for a friend's birthday. After that I went across the road and purchased 2 pieces of clothes.... a black dress, and a top to go over it.
For those foreigners who are reading this blog, I must point out that Toorak is Melbourne's most expensive suburb, and not one that I usually shop in. Save that info for later....
I came home, had a rest and got up....that's when the fun really began.
I felt restless. I couldn't concentrate on my book, (Lovely Bones), or the computer, or seem to cook dinner.
At wits end, I decided to walk Molly.
I walked up the street to my my friend Ros, and gave her a big fright.
I was acting vey strangely. I was speaking very weirdly. Though aware that all was not quite right, I don't think that I was aware to the extent.
I rang Yon, and told him that something s wrong.
He had just turned off the freeway, and would be another 20 minutes.
Meanwhile, Ros was trying to get me into her house, but I refused.
I took off with Molly to meet Yon.
I finally met Yon on Neerim Rd and jumped in the car.
He was worried as Ros had rung to alert him of my strange behaviour.
We got home, but I took off with Molly, and Yon had to chase me.
Finally home, I tried to concentrate on dinner. I needed help.
By now my behaviour could only be likened to a happy drunk.
I was loud and saying silly things.
My 25 year old son was bemused, but worried.
Yon insisted that the outfit I'd bought earlier was impulse buying.
Anyway, after dinner, Yon turned the voltage back down, and I settled down.
I took the serroquel for the 1st time in 4 days, as I'd got to sleep at 5.30am that morning.
I had a good night's sleep, and Yon rang A/Prof Williams in the morning and he suggested I turn down the stimulater further.
I was fine today.
Conclusion? I don't think that my body can tolerate large increases of voltage; better to increase gradually.
And the outfit?
Well, I really am due for some new clothes... What do you think?
karyn...the outfits are fine but i'm concerned for your heath....pray God they get that electrode thing figured out
ReplyDeleteHi Karyn,
ReplyDeleteIt's a daily (sometimes more often) challenge of fine tuning - just be aware and adjust as needed. You will eventually find a good balance.
Dress looks nice! and how's the foot?
Cheers from Linda and Paul
Great story- luckily it all ended OK! (A bit scary) And by the way- i
ReplyDeletelove the dress!
(Moshe says that type of thing happens to me without the voltage!)
Oh you have to laugh I guess.
Hope you're feeling OK now
Love Yvonne xxx
Thanks again Karyn for sharing so much.
ReplyDeleteI thought you weren't continuing the blog so I hadn't checked for a while.
What an uncomfortable experience - and how lucky to have a GP for a
husband who could do something immediately.
As I only take Madopar (and the sleeping pill which is very good and I'd
rather the nightmares than the sleeplessness) I don't know what the
medication you are still taking is for.
One thing I thought of throughout - did anyone give you an indication of
how long the DBS would be effective for you?
Thanks again
Peta
PS The dress looks great
I love the dress you look fantastic!!!
ReplyDeleteFriederike
Sent from my iPad
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ReplyDelete