And so, this journey comes to an end....or is it a new beginning?
I think I should leave it here, on a high.
I have accomplished what I wanted; and that is to diaryarise my journey with DBS and raise awareness of Parkinson's.
DBS has been successful for me. Now it's just a matter of fine tuning.
My thanks go to Professor Horne, Mr Danks and A/Prof Williams and above all, my devoted husband John Spilberg, all of whom made a seemingly difficult journey easier.
I only hope that readers have enjoyed reading my journey, and I hope that I have touched some people considering DBS, and helped them make a decision.
I know that comments are practically impossible to post here, so please email me with your comments and feedback, or any questions, and I will post them here in my final blog.
I look forward to hearing from strangers from around The World, as well as friends. So those from The USA, Canada, Ukraine, UK, Singapore, France, Malaysia, Israel, India, Pakistan, Latvia, Japan, New Zealand and of course Australia, I know you've looked, please write!
Thanks for your support,
Karyn Spilberg
karyncurly@hotmail.com
People have known me for my adventurous travels. 2011 sees me on a quite different journey.... My Deep Brain Stimulation or DBS Blog.
KARYN...AS MY GAL AMY WINEHOUSE WOULD SAY....NO...NO...NO....DON'T STOP THE BLOG.....THERE IS AFTERCARE YOU CAN BLOG.....SO AS DAN YOUR ONLY COMENTEE WOULD SAY....BLOG ON WOMAN....BLOG ON
ReplyDeleteI agree with Dan, blog on my friend, blog on.....
ReplyDeleteYOU GO BEV....
ReplyDeletehi karyn,
ReplyDeletei don't understand why but it has been impossible for me to leave comments on your blog site. i signed up as a member, i signed up with my google id, my yahoo id, i tried everything i could think of and yet it still won't accept my comments.
believe me, i read everyone of your blogs. i don't think i could have endured the length of the surgery...that was the most difficult part for me to read...trying to stay away for all that time, but it seems like it was worth it. You seem to generally be back to your old activities.
David from Florida
xoxxooxxoxox
I know that people have been having trouble, so I'm posting comments sent by email myself....
ReplyDeleteKaryn I ve been following all your blogs with great enthusiasm.
ReplyDeleteLove Lillian
Hi Karyn
ReplyDeleteI ve been following your blog right up to the last one!! I m a bit technologically challenged so it's taken me a while to get your email on my phone but I ve really wanted to communicate with you.
I can't believe what you have had to go through. As always, as I ve seen reading your story, you are inspiration, never giving a hint of "why me" just getting on with the job!!! I have warm memories of walking through your room getting to Diane's! You were always so warm and friendly as you always are when I see you!
I ve had some back issues but I was so excited to walk for Parkinson's and to see you and Diane.
Good luck in everything ahead. Small world!! Saw Allen and Caroline Wein at the walk. I hear your sons are friends.
Be well and I look forward to keeping in touch
Lillian Adler ( silver)
I'm still reading it!
ReplyDeleteYvonne Felman
Hi Karen I am interested in your news, I have been reading your journey, please keep talking !! Im listening.
ReplyDeleteTake care, Liz x
Hi Karyn
ReplyDeleteHow fantastic! You have made a truly wonderful contribution to people’s lives
Love Anita Fraymanxxx
Like the update, I check it regularly, keep adding.
ReplyDeleteYuma Bev, USA
keep YOUR BLOG PLEASE
ReplyDeleteDan, Vegas
Dear Karyn
ReplyDeleteI remember first meeting you 'online' when Paul and I sponsored this lady from Melbourne for her Vietnam Bike Ride!
Ever since that day Karyn we have followed your journey living with Parkinson's Disease, supporting you by attending as many of your Y@P meetings as we possibly can, considering we have a long journey from Geelong!! Even our 2 teenage girls have enjoyed attending your gatherings and have grown to admire you and everything you have been through.
Not only have we met at many different functions along the way including the Support Group Meetings and the Unity Walk but we have become friends as well.
We have read every word of your Blog with great interest and infact learnt more about the DBS procedure from your very informative articles and that makes our following of your previous couple of months so much easier to understand.
Not only did you achieve your goal with the help of your loving husband and 2 sons but you allowed all of us in the greater Parkinson's community to also follow your story.
Loved listening to you on the radio, watching you on George Negus and generally just knowing that you 'did it'. You managed to achieve what you set out to do and that was to not only attend the Unity Walk but to actually participate only 3 short weeks after such a major life changing experience.
Thanks again for a great blog, with many good wishes for a healthy future.
In friendship
Louise, Paul, Carmen and Danita Zajac, Geelong, Victoria
of course i'm still reading your blog...although today is supposed to be your last day of it? so far the procedure seems to have it's pluses and minuses, but overall my impression is that you have a major improvement. i especially took notice when you said you were dancing again.
ReplyDeletekeep me posted and i'll keep checking in with you.
d
xxxxx