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Sunday, June 24, 2012

10 & 1/2 months on....

I know I have not blogged for a while, but things have stabilised, and I feel that if I continue, it will be more personal, not DBS based.
HOWEVER, when I opened my blog this morning, I discovered that 35 people on average, from all over The World, check my blog every day. (Thanks to FEEJIT for supplying that information.)

So how am I doing?
Remarkably well.
When I look back over my blog, I am reminded how bad things actually were.

My toes no longer cramp or curl.
I no longer freeze.
Dyskenesia is a thing of the past.
I take a fraction of the meds I did, and if I'm late taking them, it no longer matters.
I am 'even functioning'; I don't experience "off" periods any more.
I sleep at night.
I drive normally; no more lane swapping.

On the other hand;

I have put on weight. (No more 24 hrs dyskenesia workout).
My walking is not great.
Handwriting still sux!

So I am seriously trying to lose weight; 4.6kg lost so far.
I am seeing a physio about my walking.
I love my computer!

I still ride once a week, even though it is winter, thanks to an ever reliable friend, Ingrid who is there bright eyed each Wednesday.
I do pilates once a week.

Overall, DBS has delivered everything I hoped for.
BUT (there's always a but!), I acknowledge that it may not be for everyone, and everyone who has it may not have such great results.

But life is good; I can get on with so much more now.

My next post will be from Brisbane, where I am delivering a summary of this blog (in 10 minutes + 5 for questions), in 3 week's time.
http://www.parkinsonsconference.com.au/
Then I'll report from "The Top End" of Australia, (Darwin and Kakadu), where my husband and I will be holidaying. (Last holiday was in Tasmania, the "Bottom End".)
And soon after, we will be back at our Unity Walk again.
http://www.unitywalk.com.au/
where I hope to top the 100 in 'Karyn's Crowd' who supported me last year.
Please email me if I missed you, and you want to join my team.
Donations can be made at
https://sponsor.eventarc.com/sponsor/view/168491/karyn-spiberg
And somewhere in between, watch out for my review of "A Funny Thing Happened on the way Back to the Future", where I purchased a 'cheap' seat for $200, but Michael J Fox doesn't come to Melbourne often....


So don't give up on me, 
Thanks for your support; it keeps me going,
And stay tuned.


Karyn Spilberg